In the News

News about Erythromelalgia and related stories.

In the News

Chasing the genetic origins of ‘burning man syndrome’

June 25, 2018 - Chriss, Roger - Genetic Literacy Project

Review of book by Stephen G. Waxman, MD, Chasing Men on Fire: The Story of the Search for a Pain Gene, with summary of Yale University’s Nav1.7 research.

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The Search for a Chronic Pain Gene

May 14, 2018 - Chriss, Roger - Pain News Network

Yale University’s Stephen G. Waxman, MD, publishes book Chasing Men on Fire: The Story of the Search for a Pain Gene.

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Woman battling rare condition helps raise awareness

May 7, 2018 - Kashinsky, Lisa - Eagle-Tribune

Massachusetts resident works with state representative to declare May as the state’s Erythromelalgia Awareness Month and organizes EM Awareness Day event in Boston.

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Perth dad Gwynne Erasmus learns to walk again despite suffering rare nervous disorder

March 12, 2018 - The West Australian

Australian man with EM is able to walk again after physical therapy.

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Targeting Sodium Channels for Pain Relief

January 1, 2018 - Offord, Catherine - The Scientist

Research on sodium channel Nav1.7’s role in pain perception and the search for a Nav1.7-blocking drug, including recent efforts by several pharma companies.

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Some patients with erythromelalgia respond well to corticosteroids

September 25, 2017 - Kronemyer, Bob - Pain Medicine News

Mayo Clinic study finds corticosteroids most effective when EM is caused by surgery or trauma, when onset is rapid, and when patient is treated promptly.

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End Pain Forever: How a Single Gene Could Become a Volume Knob for Human Suffering

April 18, 2017 - Hayasaki, Erika - Wired

The role of sodium channel Nav1.7 in pain perception and inherited EM, and the search for a drug that will selectively target it; includes interview with TEA member Pam Costa.

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Doctors thought it was a simple foot infection. They were so wrong.

August 22, 2016 - Boodman, Sandra G. - The Washington Post

As part of the newspaper’s Medical Mysteries column, a Maryland woman tells of her struggle to get an EM diagnosis.

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Woman Feels Like She’s ‘Burning Alive’ Because Of Rare Skin Condition Erythromelalgia

December 29, 2015 - Barcroft Media

Michigan woman tells her story of growing up with EM.

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Newly identified compounds in spider venom could help treat chronic pain

March 4, 2015 - Whiteman, Honor - Medical News Today

Spider venom contains protein molecules that block Nav1.7 pain pathways and which could lead to new treatments for chronic pain.

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Relmada Therapeutics Selects MepiGel Formulations to Advance Into Clinical Studies

February 4, 2015 - PRNewswire

Relmada announces the start of clinical studies for MepiGel, a topical formulation of the local anesthetic mepivacaine, for the treatment of neuropathic pain.  

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Biogen Idec to Expand Neuropathic Pain Portfolio With the Acquisition of Convergence Pharmaceuticals

January 11, 2015 - Business Wire

Biogen announces plans to acquire Convergence and to develop a drug that will block sodium channel Nav1.7.

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Pain That Won’t Quit

December 1, 2014 - Sutherland, Stephani - Scientific American

Discovery of molecular pathways specific to pain reveals new targets for drug development.

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Collaboration with Dr Stephen Waxman of Yale University to evaluate pharmacology of Nav1.7 mutations in chronic pain disorders

October 6, 2014 - PRNewswire

Convergence Pharmaceuticals announces collaboration with Stephen Waxman, MD, to identify patient groups likely to respond to sodium channel Nav1.7 blockers.

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Girl on Fire – Ann Arbor Pioneer Hockey Player Lauren Chapman perseveres through rare disease

February 16, 2014 - Austin, Kyle - The Ann Arbor News

TEA member Lauren Chapman tells her story to a local newspaper.

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The Quest for Better Pain Relief

July 29, 2013 - Whalen, Jeanne - The Wall Street Journal

Drug companies Pfizer, Xenon, and Convergence are working on developing painkillers that target sodium channel Nav1.7.

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Erythromelalgia – A Life of Fire and Pain

May 11, 2013 - Antoine Crawford, Elisabeth - Your Health Journal

Overview of EM written by TEA member.

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Painting through the Pain

January 21, 2013 - Gallagher, Lori - The Daily Gleaner

TEA member Heidi Grein is featured in a local newspaper for her participation in TEA’s 2012 "Paint Your Pain" art contest. 

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Painting the Pain: Sherwood Artist Shines Spotlight on Rare Disease Erythromelalgia

December 3, 2012 - Antoine, Elisabeth - The Oregon Herald

TEA member Laura Fisher is featured in a local newspaper for her participation in TEA’s 2012 "Paint Your Pain" art contest.  

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Hurt Blocker

June 15, 2012 - Ehrenberg, Rachel - Science News

Current research focuses on sodium channel Nav1.7-blocking drugs, which may relieve pain without side effects.

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Scientists find gene that controls chronic pain

September 8, 2011 - Kelland, Kate - Reuters

British scientists identify gene, HCN2, responsible for regulating chronic pain and say their discovery should help drug researchers find more effective, targeted painkillers.

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Genetic switch discovered that turns on pain

December 21, 2010 - University of Aberdeen

Scottish scientists discover "switch" that turns on a gene that allows us to feel pain, a finding that could be a step toward the development of new painkilling drugs.

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The Pain Gate: A rare disorder brings insights into the nature of pain

April 1, 2007 - Dobbs, David - Scientific American Mind

Discovery of genetic mutations linked to inherited EM offers insight into the mechanisms of neuropathic pain; includes interview with TEA member Pam Costa.  

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Rare discorder keeps woman off her feet.

January 24, 2006 - Yoo, In-Sung - Wilmington News Journal

TEA president Beth Coimbra tells her story to a local newspaper.

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The one-size dose does not fit all: Physicians and patients should look beyond the guidelines recommended by drug manufacturers

December 6, 1999 - Cohen, Jay S. - Newsweek

The importance of individualizing pharmaceutical dosages.

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