TEA Board of Directors
Founded in 1999, TEA currently has over 2,000 members residing in 17 countries. TEA was created, and is still operated, by volunteers including our Officers and the members of the Board of Directors.
Beth Coimbra has been a TEA Board member since 2001 and is the President and Treasurer of TEA. Beth lives in Pennsylvania, with her husband and looks forward to visiting frequently with her 2 adult sons. She is a licensed CPA with extensive nonprofit financial management and auditing experience. Beth served on the Board of the National Organization of Rare Disorders where she chaired the Audit Committee. Beth became involved on TEA’s Board shortly after joining TEA’s membership while in search for information her own symptoms. She has taken on greater responsibility at TEA with the hope to continue and expand the organization’s outreach and support to those with EM – those who feel they are alone in their struggle to find a diagnosis and doctor who will work with them.
Isabelle Davis joined the TEA Board in 2003. Currently Isabelle is Vice President and the writer and editor of FootSteps and other TEA publications. She worked full time in Public Relations for 15 years at the University of Pittsburgh Medical Center in Pennsylvania, producing multiple publications and serving as a hospital management staff member. A move to Michigan led to work as a freelance writer for another six years. Her EM is secondary to multiple sclerosis, which she, and a number of physicians consulted over many years, assumed was the cause of her EM. She believes she draws on her work experience at an academic medical center, knowledge of public relations, writing skills and life experience to help TEA understand the workings of academic medicine and communicate better with its members and other audiences.
Deborah Mosarski has been a board member since 2003 and lives in South Carolina. She developed EM in 1994 and can no longer work as flight attendant which she did for twelve years. Activities she enjoyed before EM were running, traveling, painting and ballroom dancing. Her EM is severe and affects her feet, hands, and face. She is married but has no children due to her illness.
Deborah has been involved in medical Internet support groups and has researched EM and her symptoms for years. She feels that the best way to help oneself and others with this illness is through education. She has found few physicians are well-informed about EM and believes that a physician’s knowledge is the first step towards advancements in research and awareness about this debilitating condition. Her hope is that with research progress can be made that will help identify, treat and possibly even prevent or heal EM.
Gayla Kanaster joined the TEA Board in 2002, and is the Networking Program Administrator. She was born with EM. After the birth of her daughter, studies done by the University of Alabama and the Mayo Clinic revealed that EM runs in her family and has affected generations. Over the years, her EM symptoms decreased slightly and she developed Raynaud’s Syndrome. However, her daughter’s case has become worse. She is the main reason that Gayla was eager to become involved in TEA. Gayla was a flight attendant for 2 1/2 years (was caught changing into flat open shoes in flight) and a travel agent for twenty. She hopes her background as president of another large non-profit organization in Los Angeles will help her contribute to TEA in some way. She and her husband moved to Tacoma, WA to be near her daughter’s family.
Laura joined the TEA board in 2013. She is an environmental attorney, and she lives and works in California’s Bay Area with her beloved old dog. Laura’s erythromelalgia is widespread, affecting her face, ears, hands, knees, and feet. After developing EM, Laura began to research as much as she could about the condition and found TEA. The information and support provided by TEA was so helpful that she decided she wanted to give back and soon joined TEA’s board. As a board member, Laura puts her years of nonprofit experience to work, focusing on outreach and fundraising to further TEA’s mission of education, awareness, and research about EM.
Jackie joined the TEA Board of Directors in 2016. She was born with EM, but diagnosed in 2008 at the Mayo Clinic. This diagnosis came as a relief, because for many years her red hands and feet baffled doctors. Jackie has tried everything from homeopathic medicine to an array of pain medications, with no relief. She eventually found that the best treatment was healthy eating, meditation and knowing your triggers. As her EM has worsened. she is using her wheelchair more, but believes the best medicine is a positive attitude.
Currently, Jackie is working on her Master’s degree in health administration and hopes to go on to a job in healthcare leadership. She is passionate about helping others, serves in many leadership roles and founded ‘Access’ an on campus disability awareness group. She hopes to use her experiences to further TEA’s mission of education, awareness and research. When her EM allows, she enjoys baking and spending time with her dog, Odin, and her fiancé, Juan.
Junior Board Member
I was born in Stockton, California in 1993. At the age of 4 I started competitive roller skating. Roller skating was my life until I was 12. I was ranked number 1 in the Western Region for two years in a row and qualified for Nationals. I decided to take a break and try basketball and volleyball. Let’s just say skating was the only thing that came natural to me.
At the end of seventh grade I began experiencing pain in my feet. The pain was so bad I developed a horrible gait and stopped walking. After being misdiagnosed several times I was diagnosed with EM.
I enjoy hanging out with friends, going to movies, playing catch with my puppy, and going on Facebook. I hope to attend a four year university and becoming a child pain psychologist. I would like to extend my experiences in helping other children with this rare disorder. My email address is firstname.lastname@example.org. Feel free to contact me anytime!
Advisory Board Member
Meriwether Jones is an independent consultant specializing in program design, program evaluation and the design and facilitation of “peer learning” retreats for organizations and groups of organizations engaged in philanthropy and/or community economic development. Meri brings much experience in service to our board with many past board positions, Executive Director of the Community Strategies Group (CSG) of The Aspen Institute, Vice-President of the Aspen Institute, Manager of Venture Development & Finance for the State of South Carolina, and The Corporation for Enterprise Development. Meri has a B.A. in economics and an MBA, and a true motivation to finding solutions to living with EM. Meri’s wife has had EM for several years.